Thursday, June 26, 2014

June 25th-26th
Wednesday and Thursday
Days 9-10

Wednesday
A good day during the day, but Camryn was still lethargic finishing her last few hours of chemotherapy. Later in the evening, Camryn's fluids became unbalanced and she was given lasix to help her. Between the hours of 11:00 pm and 4:00 am, Camryn had to go to the bathroom to relieve her bladder five times. Camryn was hooked up to six IV bags so we had to haul those with her into the bathroom and then I had to measure and record the "output" each time. By morning (Thursday), we were both exhausted from lack of sleep, but her fluid levels were normal. Mission accomplished despite the lack of sleep.

Thursday
The nausea has finally subsided which is great because Camryn now rests much more easily than before. Camy has been very relaxed today, no doubt happy that the chemo is over. Even though she has had very little food since Monday, she is getting all the nourishment she requires. Her weight has been maintained throughout the past nine days, which is exactly what her doctors wanted her to do. She still has to start eating again because the mouth sores will hit sometime next week, and eating could be painful. Camryn is now on prophylaxis anti-infective agents (bacterial and fungal) because she no longer has an immune system; her white blood cell count is officially zero. Her temperature is being monitored for any slight increases, a sign of an infection which would not be the optimal situation. The other big issue to watch is Camryn's body potentially rejecting Morgan's bone marrow.  Camryn has already been started on a "graft" medication which is used to minimize the risk of rejection. So, here we are, the night before the "harvest and the "graft". Thankfully, gratefully, all has gone considerably well. For tomorrow, Morgan will be at the hospital at 6:00 am being prepped for surgery. The harvest will begin around 8:00 am. Marrow will be extracted from her hips by a long needle that will penetrate the bone into the marrow, about 5-6 times per hip. In total, a pint of marrow will be harvested. Morgan will then be moved to recovery, and yes Morgan will be sedated the entire time. Recovery could last an hour or more. The Marrow will be taken from the 3rd floor surgery suite to the myelosuppression unit, or 6a, where Camryn is located. The bag of marrow will then been administered to Camryn, similar to a blood transfusion. We hope to have Morgan awake by then so that we can take her up to 6a so she can see the actual process occur. Somehow, someway, the transplanted marrow knows where to go to find its home inside of Camryn's bones. If all goes well, the transplanted marrow will then begin to properly graft and function normally, which would include the production of those long lost NK cells that Camryn has never had the pleasure to welcome into her body; and thus beginning the process of reversing GATA 2, Camryn's immunodeficiency. So, there it is. Camryn still has a long road to travel, which is sure to have some hills, potholes, sharp curves, and unexpected detours, but hopefully no blown engines or flat tires. Thank you all again and again for your prayers and good wishes, we have honestly felt them all, and they are working. Your faith helps to sustain us, for which we are eternally grateful.

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