Sunday, July 6, 2014

Saturday / Sunday July 5-6

Days 18-19 Hospitalization
Days 9-10 Post Transplant

Saturday

Camryn had a rough start to the day. More sores are forming in her throat making swallowing very painful. This was the first time she had tears from the pain. Made me hurt too. She was given pain meds which helped but made her sleep. Once the pain subsided Camy was very active and her normal happy self. We did plenty of walking around the unit today. The docs continue to reaffirm how well she is doing, despite the throat sores.   Early next week we will be receiving her first "labs" from the blood. The docs want to see "Morgan's" blood under the microscope, meaning that bone marrow has found its home and is beginning to function properly. So far, no signs of rejection, but that could be masked by the meds. Still, everything is on course as it should be. Oh yea, we received permission from the transplant team to allow McKay access to Camryn inside the unit. So, today they spent sometime together. Happy girl, happy McKay.

Sunday

Camryn had a decent night's rest. She still needs to urinate about 3-4 per night (more times during the day) because of all the intravenous fluids she is receiving. Camryn has become very comfortable with her hair loss, at least among family members and those who "live" in the 6a unit. She says that she looks like Gollum (the hairless creature from The Lord of the Rings or Dobby the house elf from Harry Potter). You have to appreciate her self-deprecating humor. She slept most of the day today, again, probably the pain meds. Her mood has been very good today, when awake. Still not eating much, a little ice cream and snow cones. At least it's something and we are happy for that.

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