Wednesday, July 9, 2014

Monday - Wednesday July 7-9

Days 11-13 Post Transplant
Days 20-22 Hospitalization

Much has occurred the last three days, so let me catch you up on a few things. With Morgan turning 18 and McKay's return home from Singapore, Lee Ann, Casey, and I have gotten some help with duty stay at the hospital, including overnights. Since Camryn is still on intravenous feeding, she urinates constantly including all night which kills any chance of a decent night's sleep, not that I am complaining. Camryn's health has been good, except she really has not eaten much and her fever spiked a little last night. What's left of her hair has continued to fall out. Dr. Frangoul told Camryn yesterday (Tuesday) that she needs to start eating normally before she can return home. Apparently, that strategy worked because Camryn has been throwing down the food today. Also, we received word that Camryn's white blood cell count is climbing, the best news yet. Her spike in a fever last night worried us a little bit until it was explained  to us that Camryn's rise in temperature's was a natural reaction by her new immune system attempting to " jump start" itself. Woo Hoo!! Baby steps, but they are steps forward.

Today, Camryn made a landmark decision, she told Lee Ann to cut off all of her remaining hair. So, Camryn is officially bald, except for some "peach fuzz", and has courageously accepted her situation. Now, she looks just like nearly every kid in the myelosuppression unit and she is quite comfortable with her new look. We have posted some pictures below, with Camryn's permission, of course. Tomorrow, we are supposed to find out more information about Camryn's blood, or hopefully, Morgan's blood being produced by her own bone marrow inside of Camryn. This what we have been waiting for. Stay tuned...

Love the scarf look, with scraggly hair
Camryn with "Sally", her
constant life saving companion
Camryn's look after the hair trimming. Those dark eyebrows are ligit folks. Bald IS beautiful!

Morgan's "beach" artwork of herself (dark hair)
Savannah (a little bit of blond hair), who also is 11
Years old and she is being treated for cancer,
And Camryn, the bald one.
Picasso lives.








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