98%: The Magical Number or Camryn Is No Longer Who She Was
August 2nd - August 8th
Yes, I know, so much for blogging on Tuesday. By the time I had time to blog, (I am traveling again), it was Thursday. So I decided to just wait until today (Friday) since Camryn had a regularly schedule appointment at Vandy. As you may have guessed from the title of this week's blog, the bone marrow biopsy results are in and Camryn's bone marrow is 98% Morgan's, exactly the number the transplant team was looking for. That number was met with relief and celebration on our part, smiles and elation from the good folks at Vanderbilt. We knew the results would be good because of all the changes in Camryn's warts, but that seed of doubt just sort of hung around until we had "proof" from the biopsy results. Also, another number to share with you; Camryn's white blood cell count has now risen to the "normal" range. Earlier today, members of Camryn's transplant team were comparing photos of the warts on Camryn's hands and feet taken from her first visit with the immunologist, Dr. Hummel. That visit was a bout a year and a half ago. What Lee Ann told them that they did not know was that the warts had actually gotten worse prior to the transplant. It was Dr. Hummel who connected who suspected a possible case of Gata 2 with Camryn because of her work with the doctor at the National Institute of Health, who "discovered"Gata 2 about 5 years ago. Our understanding is that Camryn is Vanderbilt's first case of Gata 2, which is one reason why all the interest in her diagnosis, treatment, and progress. her case has previously been presented at a "Grand Rounds" earlier in the year. I would expect a follow up grand rounds will be in the works in the months to come, especially if her progress continues its same course. Camryn's next bone marrow biopsy will be in about three months. At that time, or day 100 post transplant, the transplant team expects to see 100% of Camryn's marrow to be Morgan's. This is what I mean when I say, despite Camryn's amazing progress, she has a long way to go before we can officially pronounce Camryn's Gata2 diagnosis as being reversed; which ultimately is the desired outcome. So, there is the update for this week. I will blog again after Camryn's Tuesday appointment at Vandy.
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