Camryn's Journey: Sunday - Tuesday / July 13th -15th

Days 26-28 Hospitalization
Days 17-19 Post Transplant

Sunday's elation of the possibility of Camryn coming home turned into Monday's frustration of the probability of that not happening. Camryn, still not eating, but the more pressing issue has been her inability to swallow her meds. Something so simple to most of us has become a major stumbling block for Camryn. She had a "meltdown" Monday morning, refusing to take any of her pills. Two of the tablets were crushed and placed into small capsules in an effort to make swallowing them easier. Bad idea, Camryn would have not of it. So, after an hour or two of Camy completely shutting down, we got her up for a walk through the hallways which seemed to lighten the mood of doom and we essentially decided to start over. Monday night, with Camry relaxed, she downed the pills no problem. Same thing again this morning and today. The big test comes tomorrow when she will need to take the anti rejection pill, which was supposed to occur yesterday, but was delayed because of all the trouble Camy was having. Today, Camryn has been herself; happy, funny, and talkative. She is eating, a little, and taking the pills with little trouble. She wants to come home and I think that she just placed too much pressure on herself so she shut down. Despite the bumps (hills) in the road, Camy is still on target to come home on Thursday, but tomorrow is the big test. If she struggles and we have to delay until Monday, we are ok with that because Camy taking her meds are far too important not to get it right. We remain hopeful and encouraging to Camryn, but will support the docs decision. We are hoping tomorrow will be a repeat of today. By the way, for the first time since Camryn's hospitalization, she was allowed outside. The 6th floor has a private play area outside of the unit, literally outside. Camyrn was so happy to breathe the air (with her surgical mask on) and enjoy being a kid again. I have posted pictures below.